Services


ADVISERS

We have a team of advisers who provide information, advice, support, and advocacy to people with spina bifida and hydrocephalus. They also act as a resource to non specialist agencies on matters relating to spina bifida and hydrocephalus.

The ASBAH Advisers work very closely with SASBAH by assisting and supporting those with Spina Bifida and/or Hydrocephalus in Sussex. They advise individuals, families and other professionals within the voluntary and statutory sector on a range of issues and have specialist knowledge of the conditions.

EDUCATION ADVISER SERVICE 

The Education Adviser works with families, schools and colleges, to ensure that our service users get the best from their education and reach their full potential.  The adviser also aims to enhance staff’s understanding of Spina Bifida and Hydrocephalus. We also support  young people on vocational courses or voluntary work placements. If an educational problem arises or you need any advice or support please contact margaret@sasbah.org.uk 

BUDDY SCHEME

The Sussex Buddy Scheme aims to enable disabled people who find it difficult to get out and about to take advantage of what is going on locally in the company of a volunteer buddy.

Please click here for more about the Buddy Scheme

SOCIAL ACTIVITIES

SASBAH organises weekly social actrivities in both East and West Sussex. These are a good opportunity to make new friends and enjoy visiting different places. The social coordinators organise a range of activities including meals out, cinema visits, trips to the theatre, swimming, shopping and pub quizes. If you have any suggestions for activities they would be pleased to hear from you. If you would like to attend a social or speak to a coordinator please contact Jacqueline or Lisa on the numbers below.

East Sussex Social Coordinator - Rom
Telephone: 07779038542
Email: rom@sasbah.org.uk

West Sussex Social Coordinator - Lisa
Telephone 07725433136 
Email: lisa@sasbah.org.uk


Please click here for the list of upcoming social activities

MEDICAL

A special clinic is held for over 16s in the Clinical Services Department of Chailey Heritage, giving those attending the chance to see a consultant, a specialist nurse, an occupational therapist, a physiotherapist, a wheelchair expert and an adviser.

FAMILY SUPPORT

We bring families in similar circumstances together so they can share experiences and learn from each other.

RESIDENTIAL WEEKENDS AND HOLIDAYS

A variety of weekends and holidays are organised through the year for children and adults. We always need volunteers to help us have fun!


WELFARE

SASBAH makes grants to service users when no statutory help is available.


SASBAH TRAINING DAY 

SASBAH organises regular training days which cover all medical aspects of both of these conditions and also a session on life with hydrocephalus.


 

SOCIAL ENTERPRISE

SASBAH has responded to service user concern that there is a lack of work placements for those that are disabled and we are currently planning a small social enterprise that will take place at our new premises in East Sussex. More news to follow on opportunities and plans for the business.

 


SPECIAL NEEDS YOUTH CLUBS

SASBAH has two youth clubs one in West Sussex and one in East Sussex. Both clubs are made up of members aged between 11 and 25 years old and with any disability. They are both a safe and informal environment for young people to gain confidence and learn new skills.

 



YOUNG PEOPLES COMMITTEE      

A committee made up of young service users has been funded by the Big Lottery Fund to form and help shape the future of our services.



NEWSLETTER 

A quarterly newsletter is sent out to all members of SASBAH including useful information about services we provide, events, activities and loads of really useful information for those living in Sussex. To subscribe please upload this membership form and submit with your subscriptions to SASBAH.